Wednesday, October 15, 2008 |
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People are buying hyperbaric chambers for their autistic kids.
The thing that bothers me about this is not that some parents are unable to sort out fact from fiction regarding their kid's disease, or that they might be just desperate enough to try anything, or that they look elsewhere when the doctors can't give them the answers they want.
I'm a parent, and I teach self-defense to special-needs kids. I know these parents, and I know the time and effort and expense that they go to in order to give their children every possible leg-up to having the fullest life possible.
I understand doing the best you can, but sometimes not knowing what to do, or how to even find out what the best thing to do is.
The problem is that Autism is a slippery diagnosis, and what works for one kid isn't that helpful for another. It's a hodge-podge of symptoms that vary in incidence and severity from person to person, and parents can often feel like the experts are just groping in the dark with no more of a clue than the parents themselves.
Many of the things that help kids on the Autism Spectrum take a lot of time, and effort and money for small, incremental gains that can sometimes seem like consolation victories.
There is a special place in heaven for the dedicated parent of a special-needs child. Parenting takes a lot of dedication, and a lot of self-awareness, and frankly, most people have days when they just aren't up to the challenge as much as they would like to be. The more individual issues your child has that separate him or her from peers, the more days like that you are going to have.
Enter the snakes in the garden: People who exploit parents and children for profit.
OK, you've got your herb sellers and your special diet people...well, Im not equipped to say if they do any good, but some parents swear by them and I haven't heard of them doing too much harm. Whatever, can't get too excited about it one way or another. I actually take Glucosamine and Chondroitin myself, for example as well as fish oil and flax oil. I gave Glucosamine and Chondroitin to my dog when she started getting arthritic and it seemed to help for a couple of years. Probably subjective, but no big deal. I started taking it when it was fairly new. As the years have gone by, the evidence is mounting that it's effectiveness is minimal if anything. A few years ago, I used to swear by this stuff.
Why? Well, because of assurances that I would certainly develop arthritis fairly young. This was due to some fairly severe injuries to the joints (The worst of which was; both of my knees were run over by a hay wagon. Long story that involves me being embarrassingly reckless), running and martial arts as hobbies, a family history of arthritis, and the extra weight I carry. The best recommendation of doctors was to save on my knees by doing something other than running and martial arts for exercise. They recommended walking and swimming. Walking is boring, and I didn't have the money to join a gym at the time, so swimming was a summer-only activity. Plus, I LOVE running and martial arts.
So I looked elsewhere and found "joint supplements" the doctor shrugged, said the science wasn't in but it probably wouldn't hurt anything to try it.
So in other words, I didn’t like what the doctors told me and went desperately searching for an alternative solution. I thought I'd found it, and I would have SWORN to you that it was the reason my knees stopped aching and my mobility increased, and I haven’t been crippled up with arthritis even though I probably should be. But the more evidence mounts up, the more it looks like I'm wrong, and it had nothing to do with joint supplements. So I wasted some money.
But then you've got your Chelatean Therapy people and people who encourage parents to put their kids in freaking hyperbaric chambers and to not immunize their kids against potentially fatal and disfiguring illnesses, and I suddenly realize that the loop-hole that lets people sell Glucosamine and Condroitin as a treatment for arthritis, (as long as they say it's not a real treatment) is being used to market hyperbaric chambers to the parents of autistic kids.
And I say close the loop-hole. I mean it. As good as I feel after my occasional chiropractic treatments for sports injuries...close it up. When I put something out of joint, I usually go get it put back in joint and have them hit it with the EMS machine and assign me some exercises to keep it from getting thrown out again...but I'll settle for some Ibuprophin and walking it off for a couple of weeks if that's what it takes to keep predatory assholes from convincing vulnerable parents to put their kids in fucking hyperbaric chambers without any understanding of the mechanics behind if it works or how.
The wink-and-a-nod "These claims have not been evaluated by the FDA" is just not good enough as a reality check, obviously, if people are going to go to this sort of expense to put their kids in that kind of danger.
And if people actually believe the treatment works, let them come with the science to prove it. If a science-based theory is established, and the results are proved, then maybe we can find a way to get the results without such a dangerous process. And if not, the parents can get a doctor's help in evaluating if the risks are worth the results.
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Friday, August 01, 2008 |
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If we could undo just one part of the legacy of The Heritage Foundation's Contract on America, and Newt Gingrich's "Republican Revolution"...this would be the one I would root for:
Because the other things that would need to be changed would follow soon after. Evidence-based policy is good policy. And no, I'm not saying we should have a technocracy. I'm just saying that if you are making a decision based on ideology in the face of scientific evidence, then THAT should be clear.
(Hat Tip: Denialism.com) |
Friday, August 01, 2008 1:20:43 PM (Central Standard Time, UTC-06:00) | | anti-anti-science
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Wednesday, April 02, 2008 |
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Wednesday, April 02, 2008 8:03:25 PM (Central Standard Time, UTC-06:00) | | anti-anti-science
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Friday, February 22, 2008 |
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"Darwin defended slavery"
(I took the following quote from this site)
On the 19th of August we finally left the shores of Brazil. I thank God, I shall never again visit a slave country. To this day, if I hear a distant scream, it recalls with painful vividness my feelings, when passing a house near Pernambuco, I heard the most pitiable moans, and could not but suspect that some poor slave was being tortured, yet knew that I was as powerless as a child even to remonstrate. I suspected that these moans were from a tortured slave, for I was told that this was the case in another instance. Near Rio de Janeiro I lived opposite to an old lady, who kept screws to crush the fingers of her female slaves. I have staid in a house where a young household mulatto, daily and hourly, was reviled, beaten, and persecuted enough to break the spirit of the lowest animal. I have seen a little boy, six or seven years old, struck thrice with a horsewhip (before I could interfere) on his naked head, for having handed me a glass of water not quite clean; I saw his father tremble at a mere glance from his master’s eye. These latter cruelties were witnessed by me in a Spanish colony, in which it has always been said, that slaves are better treated than by the Portuguese, English, or other European nations. I have seen at Rio de Janeiro a powerful negro afraid to ward off a blow directed, as he thought, at his face. I was present when a kind-hearted man was on the point of separating for ever the men, women and little children of a large number of families who had long lived together. I will not even allude to the many heart-sickening atrocities which I authentically heard of; - nor would I have mentioned the above revolting details, had I not met with several people, so blinded by the constitutional gaiety of the negro, as to speak of slavery as a tolerable evil. Such people have generally visited the houses of the upper classes, where the domestic slaves are usually well treated; and they have not, like myself, lived amongst the lower classes. Such enquirers will ask slaves about their condition; they forget that the slave must indeed be dull, who does not calculate on the chance of his answer reaching his master’s ears.
It is argued that self-interest will prevent excessive cruelty; as if self-interest protected our domestic animals, which are far less likely than degraded slaves, to stir up the rage of their savage masters. It is an argument long since protested against with noble feelings, and strikingly exemplified, by the ever illustrious Humboldt. It is often attempted to palliate slavery by comparing the state of slaves with our poorer countrymen: if the misery of our poor be caused not by the laws of nature, but by our institutions, great is our sin; but how this bears on slavery, I cannot see; as well might the use of the thumbscrew be defended in one land, by showing that men in another land suffer from some dreadful disease. Those who look tenderly at the slave-owner and with cold heart at the slave, never seem to put themselves into the position of the latter; - what a cheerless prospect, with not even a hope of change! Picture to yourself the chance, ever hanging over you, of your wife and your little children - those objects which nature urges even the slave to call his own - being torn from you and sold like beast to the first bidder! And these deeds are done and palliated by men, who profess to love their neighbors as themselves, who believe in God, and pray that his Will be done on earth! It makes one’s blood boil, yet heart tremble, to think that we Englishmen and our American descendants, with their boastful cry of liberty, have been and are so guilty: but it is consolation to reflect, that we at least have made a greater sacrifice, than ever made by any nation, to expiate our sin.
--Charles Darwin
The Voyage of the Beagle
(Hat Tip: Pharyngula)
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Tuesday, February 19, 2008 |
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Those Gosh-darned pesky educated predictions backed up by research and facts.
How can Intelligent Design hope to compete?
Oh yeah. They have Ben Stein. Never mind. His powers of snidely droning on and on about liberal fascism will prevail. No one can withstand the power of his droll and slighly pouty drone. The only people who listen to facts are effete snobs with alphabet soup after their names, and they will be the first ones up against the wall when the revolution comes.
(Hat Tip: Jason Bock) |
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Friday, February 15, 2008 |
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Just a quickie, as I have a lot to do today!
I just read on another website about how environmentalism kills 2 million people per year because environmental hysteria caused the banning of DDT. I'd give you link, but it bothers the guy when I link to him.
Just in case you have been exposed to this myth, or know someone who has, here's some facts.
The DDT Ban Myth (quote from this site follows):
Several anti-environmentalists have claimed that public concern over the effects of DDT after the publication of Rachel Carson's Silent Spring led to a ban on the pesticide in some third world countries in the 1960s. This ban, it is claimed, led to a resurgence in malaria, resulting in thousands of deaths. But in accounts of the war on malaria, such as in Laurie Garrett's The Coming Plague, it is clear that the suspension of spraying programs was unrelated to any environmental concerns. In fact, DDT continued to be the insecticide of choice in the battle against malaria as recently as 1994, some 30 years after the alleged ban, in areas where it was still effective (Curtis). Before considering what actually happened, let's see how some anti-environmentalists described the alleged ban.
Here's a quote from the Wikipedia entry:
The World Health Organization estimates there are between 300 million and 500 million cases of malaria every year, resulting in more than 1 million deaths,[63] with about 90% of these deaths occuring in Africa, mostly to children under the age of 5.
Most prior use of DDT was in agriculture, but the controlled use of DDT continues to this day for the purposes of public health. Current use for disease control requires only a small fraction of the amounts previously used in agriculture, and at these levels the pesticide is much less likely to cause environmental problems. Residual house spraying involves the treatment of all interior walls and ceilings with insecticide, and is particularly effective against mosquitoes, which favour indoor resting before or after feeding. Advocated as the mainstay of malaria eradication programmes in the late 1950s and 1960s, DDT remains a major component of control programmes in southern African states, though many countries have abandoned or curtailed their spraying activities. South Africa, Swaziland, Mozambique and Ecuador are examples of countries that have very successfully reduced malaria infestations with DDT.
Indeed, the problems facing health officials in their fight against malaria neither begin nor end with DDT. Experts tie the spread of malaria to numerous factors, including the resistance of the malaria parasite itself to the drugs traditionally used to treat the illness[64] and a chronic lack of funds in the countries worst hit by malaria.
The growth of resistance to DDT and the fear that DDT may be harmful both to humans and the environment led the U.N., donor countries, and various national governments to restrict or curtail the use of DDT in vector control. At the same time, use of DDT as an agricultural insecticide was often unrestricted, and restrictions were often evaded, especially in developing countries where malaria is rife, so that resistance continued to grow.[14]
[UPDATE: the same blog entry that discusses how "harmless" DDT is has now spawned derisive comments about how evivormentalists are forcing poor people to eat Twinkies because they made apples expensive by banning Alar...another chemical that they claim is completely harmless.]
Here are some real facts about Alar.
http://www.sourcewatch.org/index.php?title=Alar_and_apples
http://www.pbs.org/tradesecrets/docs/alarscarenegin.html
But if your one of the people that think that Alar and DDT are prefectly safe, and that people don't have any choice because fresh fruit costs more than Twinkies...and it's the evil liberals fault...don't worry. The brave Libertarians over at Center For Consumer Freedom are protecting you.
They mock the "Alar Scare" all the time, referencing it to deride every concern about nearly every food danger that comes down the pike. They are also defending you from "fat nazis" who want to take away your freedom to eat guilt free:
http://www.consumerfreedom.com/oped_detail.cfm/oped/523
No kidding...here's the title of the article:
Preserve right to eat without guilt: Don't post calories of fast-food dishes
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Friday, February 15, 2008 11:45:40 AM (Central Standard Time, UTC-06:00) | | anti-anti-science
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Wednesday, April 18, 2007 |
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ERV points out that "framing" is inadequate with some audiences and in some situations, such as dealing with the Discovery Institute on "their" turf. This is because they cheat.
If Framing is a screw driver, you can't be sucessful with it in situations that call for a hammer.
You don't engage in a "framing" debate at a Discovery Institute event where the only purpose of having a counter argument is to bring in big names to add legitamacy to the event. No matter how well you "frame" your argument, it's not going to have much effect when you have fifteen minutes and the Discovery Institute has a couple of days. As ERV pointed out, a Q&A that only allows students to ask screened questions is also not helpful.
In a closed system, this would be a disaster. However, getting those facts out to any media coverage on the event would be a good start.
That's framing.
The Discovery Institute "frames" this event as a debate. We need to get the word out that it is a sham. Use analogies to sporting events. The Discovery Institute is holding a track meet, invites world class atheletes, and then only allows them to run if they agree to run while wearing fat suits. This is so their people can "win" and say they beat world-class athletes.
When the world-class athletes turn down the invitation, the Discovery Institute can say "they're afraid" when it is the Discovery Institute that is afraid of fair competition.
John Q public is going to say "Huh. I don't blame them. I wouldn't go to a track meet and run in a fat suit either."
Right now, if you get into an evolution debate with a rank-and-file creationist, they spew every single Discovery Institute talking point down to the punctuation. But when you say "Oh, the Discovery Institute" they say "who's that?"
Now, when they hear something from the Discovery Institute, they are going to say "Oh. Those are the guys who can't handle fair competition with their ideas. " and go in search of other information.
They still might be creationists, but at least their sense of fairness won't let them use DI talking points whereas before they were unaware of even where that information was coming from.
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Sunday, March 25, 2007 |
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Skeptico takes an analogy from a believer in "psychic powers" and makes it do it's little turn on the catwalk.
Awesome.
(Hat Tip: Bad Astronomy) |
Sunday, March 25, 2007 6:54:23 AM (Central Standard Time, UTC-06:00) | | anti-anti-science
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